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Can I tap your head?

I don’t usually expose a lot of Dan’s traits in writing. It’s his story. I just happen to be his mom. Lucky and blessed to be his mom, rather. He’s been “quirky” since early on. Noises bothered him, different textures annoyed him, obsessive thoughts consumed him (and us.) I knew he was on the autistic spectrum before I really even knew much about “the spectrum.” 

It’s taken years for me to really grasp that it’s not the Plague. It’s a different operating system for the brain. 

Vacations have always been a bit stressful. No, A LOT stressful. He had to know exactly where we were going. Constantly worried about where the gauge was on the fuel indicator. “Those are driver worries, not passenger worries” I’d tell him. Not that it would help. “Do you know where we are going? What if we get lost? Do you have a map? Please don’t tell me you’ve never been here before.” These weren’t fleeting thoughts, they were gut-wrenching, fear-driven concerns.

Dogs. Terrified of dogs. We couldn’t walk past a dog. Not even a gentle dog on a leash. Dan would immediately tense up, color disappear from his face.

I’d be on edge walking through busy areas and touristy downtown streets. I couldn’t be out of his sight. He’d worried that I was going to disappear. Or he would be so lost in his own world that he wouldn’t notice stop signs or cross walks. Yeah, the stuff mom nightmares are made of.

He’s gone through many phases. We adapt, we play along. We constantly try to point out what’s “appropriate” behavior and what’s not. All while trying to embrace his uniqueness and trying not to suck the fun and personality out of this unique guy. He likes to tap people on the head. Why? I have no clue. He likes to sit under tables. Why? Again, if I only had the answers. He thinks it would be really great to dump pop or water on your head. As my husband and I try to make sure he can function in society, we tell him that’s not typical adult behavior, and he IS technically an adult. I’ve resorted to telling him he has to respect people’s personal space. If he asks and they don’t mind an occasional head tap, so be it. (He hasn’t found anyone that has agreed to having a cold beverage dumped on their head, though. At least not YET.) And last, but not to least, every conversation you might possibly find yourself engaged in with him, will start or end with facts about the Titanic. Those facts may even be sprinkled throughout the entire dialogue.

Our traveling companion is often my mom. Every summer she, Dan and I go away for a few days. He loves rock hunting so we often venture off to some of Michigan’s plentiful rocky beaches. We each go our own way along the shoreline, quietly sifting through nature’s treasures, each of us picking those that meet our own personal definition of special or unique.

We relax at the hotel pool, a family from Turkey occupying the same small poolside section as us. The 18 year old Turkish boy strikes up a conversation with Dan, telling him he’s going to attend U of M this fall. Dan looks at him and asks if he likes to sit under tables. “No, I don’t think I ever have but I bet I know why you do.” Dan asks, “you do?” “Yeah, I think I do. I know the world is sometimes overwhelming, I bet it feels good to be under a table sometimes, maybe safe and like you have your own space?” I’m absolutely delighted with the insightfulness of the young man. “Yeah, I guess” answers Dan, as he scurries over to the boy’s dad to inquire about his age. “You look about the age of my dad, he’s 62.” The gentleman tells him he’s pretty close, as he is 64.” We have had many a talk about not asking people’s age, weight or annual income. He can never seem to find that filter when he needs it.

We head to the coffee shop where a man, likely around 25, is sitting outside at a table. His laptop in place as he intently works on some project. Dan politely approaches him (something he is finally getting more comfortable doing.) I sit back and observe, he’s got this, right? He can socialize without me intervening. “Hey, what are you working on?” I’m proud, that’s acceptable, after all. The guy starts explaining his task at hand. Dan grins (uh-oh, I thought….it’s coming.) “Can I throw a rock at your computer??” Silence. The guy eeks out a grin. “Ya, sure.” Dan exclaims, “Really?? Such glee in his voice. “But you’ll have to buy me a new one.” Dan says, “oh, man!!” They both laugh. Dan returns to his seat to finish his cookie and Mango smoothie. He only likes smoothies with Mango, you know. Bananas have a weird texture.

Off to the harbor, it’s a beautiful hot, sunny day. We walk along the docks, marveling at the fortune docked at that marina. We spot a huge yacht. I can see Dan’s wheels spinning. He can’t get over there fast enough to get a closer look. The owner is on the deck. “I like your boat. Do you live on that thing?” “Sometimes! Every summer we take it to Nova Scotia.” His response is smug, he isn’t really giving Dan eye contact as he hoses off the deck. “How much did that thing cost??” “I don’t remember.” “What?? You don’t remember?? What kind of answer is that, you’re not gonna forget how much you paid for something like that.” My face is red. The man responds, “well, we don’t talk about that.” Fair enough, I thought. After all, life is a good teacher. Dan asks enough of these questions to the wrong people, it will sink in, right??

We continue to venture around, we wander downtown, where dozens of people seem to have a dog on a leash with them. I notice for the first time that Dan isn’t panicking. He is acting as if they aren’t even there. He is comfortable. He is walking several paces ahead of us. He doesn’t seem to notice or care that I’m not right on his heels. And we he got to the corner, he stopped. These things are huge. These are milestones that most kids reach a decade or more sooner. My heart is smiling.

In the car, his headphones are on covering his ears as they always do. Drowning out the outside world, he retreats to the music and thoughts that entertain him. With every stop we make, he interacts in some small way with someone. I observe from the sidelines. He struggles to resist asking restaurant waiters if he can toss the salt shaker into the nearby water and stuff like that. Thank goodness we encountered many people that took his odd requests lightly and even joked back with him a bit.

On our long trip home, he educated my mom and I on so many things. He sounded like a college professor telling us about the planets, different countries, leaders, kings and queens, plagues that have existed once up a time. He is a sponge for facts. We are in a awe. My mom questions him as to why, with all of his intelligence, does he chooses to ask people if he can dump something on their head. “I don’t know, it’s more fun.” We stop at a small rural gas station, he hurries in before us. We enter just in time to hear him ask the young attendant how old she is (19) and why she is there by herself so late at night. Then he asks if he can go behind the counter. She says, “no…nobody but our workers can come back here.” He grins, “well, I wouldn’t hurt anybody. I don’t even own a jack knife.” We all busted in to laughter. She said, “well that’s good.” She lit up and enjoyed his humor.

We finished the rest of our journey home, Dan as calm and content as I have seen him. “I have so much energy locked up, I feel I could run home,” he tells me. His trampoline is the first thing he seeks out when we open the door. I tell him what a great trip it was. “Do you think I am weird?” Puzzled by that question, I ask him why he would ask me that. “Because I ask people unusual things and I sometimes sit under tables.” “Nah, unique, interesting, peculiar maybe.” He smirks. He’s good with that. So am I.


BECAUSE IT’S APRIL……

April. April showers. April fools day. Tax day. Earth day. Now April is Autism Awareness Month. If you are affected by Autism, you are already aware. Well aware. Every single day. All negativity aside, we choose to see the positives and our lives are sweetly enriched because of it. Would I change my autistic person, trade him in for a neurotypical version? Not on my life.

I hesitate to write much about our experience these days. Writing is therapy to me, but this isn’t just my story. It’s my son’s, too, and I don’t want to disregard his right to privacy for my own benefit. I nonchalantly announce, “April is Autism Awareness Month. I want to blog about it but I would want to mention you. Would that upset you?” He looks at me blankly and utters a matter-of-fact “no,” while he methodically jumps on his exercise trampoline that has been situated in our family room for over a decade and a half. His long, skinny arms rhythmically flail in the air. His face displays a smirky grin as he starts talking about the Titanic.

At least eighteen of the last twenty-two years have consisted of quirky behaviors, comments and atypical thoughts. It is our normal here. I can’t even call it a “new normal,” by now it’s old. I can only imagine what our lifestyle looks like to people who have never had reason to observe or experience it. Judgmental people abound, but at this point in my motherhood, the judgement doesn’t phase me much. Well, it might phase me a little, but every day I get a little more refined at handling my responses.

Ignorance is bliss. As the number of people on the Autism spectrum rises (for whatever reason), education is so important to help people understand that acceptance and tolerance is essential. Truth is, you can’t make an autistic person act neurotypical (aka “normal”) any more that you can make a neurotypical act autistic. It’s exhausting trying to fit the proverbial square peg in a round hole. Society expects these intelligent, interesting, quirky souls to adapt to an environment carved out for people without this type of hard-wiring. This imposes extreme anxiety on those that are already using every coping mechanism they have to simply make it through the day. Self-stimming behaviors (rocking back and forth, pacing and what-not), melt downs, repetitive phrases and behaviors, fixations on certain topics of interest, lack of eye contact, intrusive thoughts, aversions to certain clothing, fabric and food textures, lack of coordination, are just a handful of things that accompany this diagnosis. Unfiltered comments are characteristic, as well. The awkwardness is enough to make friendships and bonds difficult. But just because it doesn’t come easy to them doesn’t mean they don’t long for connection, comfort and attachment. Isn’t a sense of belonging a basic human need?

Being a spectrum disorder, symptoms can range from mild to severe. The person doesn’t outgrow the diagnosis, it doesn’t magically disappear on their eighteenth birthday. Sure, some things get easier to manage. And some things don’t. People don’t typically expect a young man to ask if he can go through the tip jar at a local business to see if contains coins that his collection needs. “I will trade you if I find something good,” I have trained him to announce before he reaches for the container of hard-earned money.

I am beyond proud of my trivia-loving, history buff, fossil fanatic, Titanic-obsessed, coin collecting son. He has the funniest sense of humor. He follows rules without being told. He’s uncomfortable with inappropriate language and activities on TV. He reminds me not to swear and that drinking wine and beer is not a good idea when you’re gonna drive, or even if you’re not gonna drive. Worn out jeans are unacceptable and why on earth would anyone pay good money for jeans with rips and tears in them? He’s a good moral compass. He has an odd fascination with weight. He will guess how much you weigh and do the necessary math to figure out your BMI. He isn’t much for affection, so my heart melted when he gave me a hug and announced that he really loves me “even though my BMI is too high.” I took the compliment, sincere as it was intended, and felt more loved than ever.

Sometimes he has an urge to ask ridiculous questions. I guess it’s an impulse he struggles to control. Last summer at a restaurant while on vacation, he randomly asked the waitress if he could throw a spoon at the tv. My husband’s face turned red and he was about to scold him, as the waitress of baby boomer age smiled and said that, in all her days, this was the first time anyone had ever asked her that. The comment seemed to connect them and they enjoyed chatting and giggling with one another throughout our meal. When we left, she told him he made her day and that she would secretly like to throw a spoon at the tv, too. He has memorized the names of all the contacts in his dad’s phone and habitually rattles off the names, wanting to text them. My husband looks at him with the typical “you’re on my last nerve” look, then gently reaches over to give him a hug and tell him what a great guy he is.

I am thankful to the unoffended souls that reply “too much” when he poses the weight question. I applaud the people that willingly listen to his elaborate explanations of the Titanic and the unsolicited lessons on Brachiopods and Ammonites. I appreciate those that don’t panic over the lack of eye contact or the inappropriate comments, the statements made without the filter. I am forever grateful to the small business owner that initally treated him like he had the plague, then realized how cool he really is, and now saves special coins to give him when he visits her store.

What can you do for Autism Awareness Month? Check out a book at the library about it, listen to a podcast. Pay attention to those who seem to appear different or struggle in social situations. Teach your kids about them and how to include them at school and in their social circles. Don’t be okay with your kids excluding that one kid from the birthday party invite list. I know my son probably didn’t notice that occurrence so many years ago, but I did. And I will take that hurt with me to my grave.

We sit together near the world map on his bedroom wall. I call out the names of lesser-known, small countries. He jumps up and points to each one without much forethought. I am in awe of his memory and intelligence. It totally makes up for the lack of coordination to tie shoes. Slip-ons are more practical anyway.

The White Bucket

“Neurodivergent.” Do you know what that means? Please, let me tell you. According to Oxford Dictionaries, “differing in mental or neurological function from what is considered typical or normal (frequently used with reference to autistic spectrum disorders); not neurotypical.” Neurodivergent people have brains that work according to a different operating system, not a defective one. And trying to “fix” or “change” these individuals is damaging and cruel, in my opinion. According to educational material I have obtained through the Cleveland Clinic, neurodiversity refers to the way a person’s brain develops. It is not preventable, treatable or curable. It IS, however, manageable in most cases.

Individuals that do not have symptoms or issues that interfere with their social abilities, thought patterns and/or behaviors are most likely labeled as “neurotypical.” If that describes you, congratulations! But you know what? I bet you’re really not “normal” either. Because who knows what “normal” is. Is there such a thing?

My husband and I have the pleasure of raising our son that is neurodivergent (Autistic Spectrum.) He is not wired to give you eye contact, he thinks it is creepy and he hates it. He reserves smiles for very special occasions. He has no filter in social situations and will ask you your weight and promptly figure out your BMI (body mass index.) Of course we have discussed the inappropriateness of this and that you will never have women as friends if you quiz them on their weight. It’s an obsessive thought he has. And obsessive thoughts don’t go away quietly. He will let you know when you have overstayed your welcome. He will move around and jump and swing his arms when you think he shouldn’t. The repetitive motion soothes him and likely doesn’t harm you in any way. Annoy you? Maybe. But chances are good you might have some annoying habits, too.

He will randomly ask if he can dump pop on your head. Or sit on the hood of your brand new car. Would he do these things? No. Does he thrive on your reaction? Absolutely.

He can talk to you for hours about WWII, The Civil War, The War of 1812, The Titanic, The Bismarck battleship, The Wreck of the Edmund Fitzgerald. He can point to any country, no matter how small, on a world map with absolutely no hesitation. He can throw a 1000 piece puzzle together in no time and remember details of events that would absolutely astound you. His brain is a sponge for knowledge. Tying shoes or remembering to zip up zippers is another story.

And there’s always advice from people on the sidelines. The peanut gallery. Those who haven’t lived a day as or with the neurodivergent.” “Shouldn’t he be driving?” (Do you want someone that struggles with constant thought distractions behind the wheel, simply because he’s old enough?) “Why don’t you have him get a job at McDonald’s? (Hmmmm….perfect place for a guy with a weight obsession. No ma’am, you shouldn’t get that Big Mac. I bet your BMI is already around 35.) “Shouldn’t he be taking more than two college classes at a time?” Well, if that was possible for him, he would.

Forcing people to adapt to our thought processes is unreasonable. And you know what? Many people that have made big, positive impacts in our society have been said to be neurodivergent. (Thomas Jefferson, Emily Dickinson, Bill Gates, Albert Einstein, Steve Jobs, Andy Warhol, only to name a few.)

Our world NEEDS neurodivergent people. We need to embrace them, encourage them, love them. Accept them. I promise you, they are wired this way for a reason. They can add such lightheartedness, humor and interesting information to your life.

Do I think about the future? Of course. Don’t you? Do I worry about my son’s future successes in life. Um, yeah. I bet you worry about your neurotypical kids’ future, too. Do I do my best to give him the tools and help and advice to get through life? Yes. But the drum he beats to is his own. I don’t get to choose. Nor do I want to. For now, we take our white bucket to the beach (the white one, it’s sturdy and doesn’t have words on it, words on a bucket are distracting.) We pick through rocks and fossils. We laugh and love the intricacies of nature. It’s perfect in its imperfectness.

Every day we strive to learn more, understand more and embrace each other more. Because we are all who we are for a divine reason.

Bucket Lists….

Do you have one?? The proverbial “bucket list,” you know….the experiences you want to engage in before you kick the bucket? My list is long, and ever-evolving. The older I get, the more precious this list becomes. My list is really not extravagant. A lot of things I want to do or see are right here in the glorious USA.

I’m a music enthusiast, not limited to any particular genre. I can’t carry a tune in a basket and have no knowledge or desire to play an instrument. But I have the utmost admiration and respect for those who can and do. Music is constantly playing the periphery or in the forefront of my daily life. When my dear friend enthusiastically messaged me that Bruce Springsteen and the E Street Band were coming to Detroit on their current tour, I wasted no time securing tickets. Another check off my list. I mean, Bruce is 73, the fear of him kicking the bucket in the near future kind of exceeds the fear of me kicking it. It was a no-brainer, I was going.

When I set eyes on the set list that he had been performing at recent shows, I was a bit disappointed. I mean, why would he not do “Brilliant Disguise” or “Born in the USA” or “Human Touch.” Aren’t those Springsteen classics? I ignored my dismay and trusted that “The Boss” knew what he was doing. After all, you don’t maintain a successful career spanning more than five decades by disappointing your fan base.

On the night of the show, we eat dinner at the hotel restaurant. The other couple with us are longtime friends and we are enjoying drinks, food and easy conversation. Before long, a woman I’d guess to be in her late sixties, of short stature and a petite frame appears at our table. Adorned in flashy apparel, a Springsteen t-shirt, a glittery red bow in her bleached-blonde hair and heavily applied makeup, she asks us if we are going to the show. “Hey, you know it!” She shifts her walking cane to her other hand and proudly points to the pin on her shirt, announcing that she is a “Spring nut” and goes on to tell us that it’s a group of 10,000 members and we can join if we want! She follows the tour schedule, showing up at most of the shows. She gives us a spoiler alert about how Bruce will wrap up the show. How he will rip open his shirt, exposing his buff physique, and bust into “Tenth Avenue Freeze Out” with the big screen displaying a touching tribute to the late, great Clarence (the legendary E-Street Band saxaphone-playing genius.)

We make way to the venue, standing out in the cold March air, among thousands of fellow fans. A predominantly 50+ crowd eagerly awaiting the performance. The show starts promptly as scheduled and the crowd goes wild as a svelt Springsteen gracefully makes his way to the stage, accompanied by his E-street band, made up of about eighteen musicians. I am in awe at the energy and talent that fills the stage at that very moment. Steven Van Zandt, wearing his trademark head cover, emitting a stage presence that you can feel. Bruce owns the stage, but proudly shares the glory with his deserving bandmates. I was mesmerized, singing along with the songs I didn’t think I liked. Turns out, I do like them. And haven’t quit singing them in my head ever since. I keep asking Alexa to play “Ghosts,” “Letter to You,” the awesome cover of the Commodores “Night Shift” and “Tenth Avenue Freeze-Out.”

They performed for nearly three hours without a single break. No period of silence between songs. One song simply morphing into the next. Bruce sang with his characteristically rough voice, accompanied by a soulful edge that was nothing short of captivating. The back-up singers harmonizing flawlessly. The drummers, the saxaphone, various horns and guitars. The harmonica that The Boss played in between belting out song lyrics like it was effortless. Everything and everone involved working together to create musical perfection. This made me realize how lucky we, the fans, are that these talented people have devoted their lives to perfecting their crafts. Because through them we feel heard, understood, part of something outside of our otherwise quiet existence. “Show a little faith, there’s magic in the night. You ain’t a beauty, buy hey, you’re alright. Oh, and that’s alright with me.” The crowd sings along as one song shifts to the next. “Tramps like us, baby we were born to run!!!” The energy contagious. Chants of “Bruce, Bruce, Bruuuucce!” coming from every direction. People standing to dance a little or swaying in their seats.

And just as the “Spring nut” promised, Bruce did rip his shirt open and bust into the “Tenth Avenue Freeze-Out” song with a photographic tribute to Clarence showing overhead. The encore was a generous offering of several songs and I don’t think a soul in the place was ready for the night to end. My heart was full and to be honest, I didn’t really even mind that some of my favorite hits weren’t in the set list. Because now I have some new faves. And I have an immense appreciation for the E Street Band. They are phenomenal. The chemistry between them all is amazing.

We end our evening back at the hotel bar. The previously described lady is there and seeks us out. She encourages us once again to join the “Spring nuts.” She’s already planning her trip to the Cleveland concert. She spits out names of various band members and tells us the truck driver even gives the Spring nuts inside information. Her charisma for Bruce and the band is contagious. I guess that’s what music does. It connects all different walks of life together and reminds us maybe we aren’t all that different after all. Maybe that’s why I like it so much.

We wake up in the morning, in a hotel overlooking the maginficent city of Detroit. Norb chuckles and says, so….”are we gonna join the Spring nuts, I mean isn’t that just what I need, to be part of the the central intelligence for the Springsteen tours?” I love his sarcasm. And who knows, maybe we will join the Spring nuts. I will keep you posted.

My past life……

Ever wonder if you lived before? I think if I did I was in a whole different social class than I am now. The only thing that transferred here with me is high-faluting taste. The accomodating budget stayed wherever I came from.

I swear you can set two similar items next to eachother. One $20 the other $200. I would unknowingly choose the item bearing the higher price tag. Every. Single. Time. I certainly didn’t inherit this practice from my thrift store, Dollar-Tree shopping mother.

What even got me thinking about this? I think it was the Melissa McCarthy Booking.com commercial. My husband enthusiastically called for me to see the advertisement, announcing that her partner in the clip is her real spouse. Apparently he thought that fact was worthy of distracting me from what I was doing at the time (which, mind you, is long gone from my memory.) I didn’t notice anything about the booking.com promotion other than Melissa’s pajamas. That’s right. Her pajamas. They have lingered in my mind ever since. I want them. The intent of making moms everywhere long for a vacation “somewhere, anywhere” was missed on me. I want the pj’s. I lay in bed last night, tossing and turning. I can’t get comfortable. But I bet I could if I had that beautiful nightwear on. I reach for my phone, it’s under the bed for emergencies such as this. I get right to the point, “what pajamas is Melissa McCarthy wearing in booking commercial?” Aha……”As seen on TV…watch Melissa McCarthy get swept away in her ‘PRINTFRESH’ HIGH HORSE PAJAMAS. That’s it. I found them. In the bat of an eye, I’m scrolling through the Printfresh site, there they are!! All vibrant and colorful and pretty. Horses adorning the eye-catching print. Ohhhhhhhh……I need these. I don’t really like horses. But I like pretty. I like blue, I like soft, I like bright colors. I like flowers. Oh yes….I need these. I find my size. They’re going in my cart. Gulp $158.00. And if I want the coordinating robe it’s an additional $248.00. What was I expecting? This Superbowl focused commercial to have the actress wearing pajamas from TJ Maxx? I reluctantly refrain from the purchase though it continues to haunt me. But when the sensical Colette emerges (the one that doesn’t always show her face when it comes to purchases) I have to listen. I calculate how many hours I have to work as a nurse to buy that conglomeration.

I will say advertising is brilliant. It can suck a blue collar worker like myself into longing for something they’d have to work hours to afford. Maybe some people wouldn’t notice that stuff. That’s why I’m quite sure I was something fancier and wealthier in my past life. Eventually I did fall asleep, in my mismatched pajamas.

In the eye of the beholder….

For as long as I can remember I have loved photographs. I tend to wander through my daily activities, examining my surroundings as though I am looking through the lens of my beloved camera, randomly framing and cropping images in my mind.

They say beauty is in the eye of the beholder. That being said, I love seeing things in their imperfect states. The leaf that has fallen from its connection to life, settling into the wet autumn ground after being beaten down by rain and wind. Hundreds, maybe thousands of them settle into earth’s bed and together create a composite that is fascinating and pretty, even though most have lost their vibrant status by that time.

The flower with a bent stem and missing petals. It has character. Candid photos of a kid with bedhead and missing teeth, complete with evidence of a messy meal lingering on pudgy cheeks. Reminders that it’s okay to be carefree.

The elderly man with wrinkled, weathered hands signifying years of hard work. The aging woman with deep lines embedded in her sweet face. A face that has seen and endured much over the prior decades. The young lady with imperfect teeth but a huge smile. I most often find those with unusual or unwanted attributes to be the most charming and intriguing.

I love modern technology and I hate it. Mostly because we all seem to think the original state of things, mainly ourselves, isn’t good enough as is. Those of us in our 50’s seem to think we aren’t supposed to have “laugh lines,” graying hair and extra chins. Like a filter making us appear with even-toned skin, chiseled jaws and smooth, flawless skin is going to increase our worth. I’m as guilty as anyone about developing some sort of paranoia over how I look in photos. But why? Filters and advanced editing won’t change the me that you see when you’re standing in front of me.

It’s sort of ironic that I embrace and appreciate imperfections in everyone and everything but myself. Most can identify with this to some capacity, I would bet.

I’m going to keep looking around with my forgiving eye at the world around me, snapping “still lifes” in my head and sneaking candid pics of those I love and those I barely know. Life is interesting and imperfect and ugly and beautiful all at the same time.

Maybe it’s “stuff,” maybe it’s “precious memories”

“Live simply” they say, “less is more,” “less clutter, less stress.” There’s truth in these cliches and I know it. Too much “stuff” makes my anxiety soar. And though it may not occupy every square inch of our living environment, it’s there. Under beds, in closets, behind the selectively closed door of the basement.

It’s a new year, I’m going to blaze through this house and get rid of the extra dust collectors, the things we don’t use. I make the usual “donate” and “trash” piles. I recruit my son to help, we start in his room. He starts rummaging through his rock and fossil collections. He carefully inspects each formation and announces its importance, the defining characteristics that set it apart from the others and make it special. To me, its a pile of rocks. And how many Petoskey stones, horn corals and Crinoids does one need, I ask myself? In this house, it’s a dumb question. I leave him to assess his own belongings and I go for the closet. The closet that has housed the majority of his art projects, report cards and homework assignments that took an act of God to complete. I feel a lump in my throat as I retrieve “Annie” the dinosaur that went everywhere with us for years. I set the stuffed Stegosaurus aside and start tossing the broken crayons, dried out markers and random puzzle pieces into the trash pile. The sentimental findings are too much so I relocate into the kitchen. Surely no items carrying any sentimental value will be found in there.

I don’t need multiple spatulas and duplicates of various kitchen utensils, I don’t. I easily toss them into the “donate” pile. Identifying kitchen towels that have achieved rag status is easy. Nothing emotionally difficult in here, I can purge this room ’til my heart’s content. Or maybe until I open the cupboard that contains the pink and white fish-shaped melamine serving plate. The one that I took out to all of the backyard campfires over the years. Ohhh, on it I would carefully arrange all the fixings for S’mores to treat the neighborhood kids, friends, family. If I get rid of that, I’m throwing away proof of that precious memory.

I find myself looking through CD’s. This will be a piece of cake. Who even listens to compact discs anymore? One by one, I toss them into the donate pile. Until I get to the John Hiatt CD case, with the Interlochen concert ticket stub stuffed inside the cracked case. My mind flashes back nearly 2 decades. I remember the details of that trip. Me belting out “Buffalo River Home” there and back so many times Norb was ready to leave me on the side of the road. That one has to stay, along with Gordon Lightfoot and Eric Clapton’s Greatest Hits. Too many memories attached to those.

I attempt to tackle one last nook of this house today. My bedroom closet. It’s pretty organized, being I tackled it not long ago. I start sorting through the purses and stop cold when I spot the Madras plaid handbag with the ant pattern. A random ant here, a random ant there. I bought the designer purse many years ago when Dan was a little boy and had an obsession with ants. I carried that purse proudly and oh how he loved it. That one stays in the purse bin. It has to.

As I reflect through my findings, I realize my attachment is to the memories and not necessarily the objects themself. It feels like parting with these things is parting with periods of time I will never get back. So I dust them off and put them back in their respective places. Because while I want a tidy home, I also want one with meaning, with scattered bits of nostalgia, where I can easily spot something that makes me say, “hey…..remember when???”

I holler for Dan to grab the clear containers for the rocks. We organize them as best we can, not parting with a single one. We dust them off and head for town. I grab my John Hiatt CD. I sing “Buffalo River Home” and my reflective, sappy mind is content.

“Blessings are Everywhere……”

This past week has been eye opening. No pun intended. Well, maybe. My mom had a close call with her vision and surgery needed to happen asap. I am her mother now, you know. For the past several years we have been living a role reversal in our relationship. I’m the 53 year old baby of the family. But regardless of birth order, I have taken it upon myself to worry about her, look after her and scold her when need be. Like when she wears white socks with black old lady shoes and dark pants that are too short, or bobby pins in her hair, or when she doesn’t pick up after herself.

We are as different as we are alike. I’m friendly with a conservative edge. She’s friendly with an extra side of sticky sweet. It’s rare to take her anywhere without her stopping to thank random employees for their hard work. They could be emptying the trash, but she’s sure to stop and let them know their work doesn’t go unnoticed and that their job makes a difference. She has this unwavering need to connect with people and to be quite honest, it annoys me to pieces. It’s embarrassing when she is habitually poking her head into stranger’s conversations or striking up some sort of dialogue with people quietly minding their own business in a restaurant. My eyes roll as I mutter under my breath, “oh lord…. here she goes. Couldn’t she please sit down and blend into the background?”

When we got word that her eyes were in danger of total vision loss or significant impairment, we wasted no time packing up and heading to the other side of the state where surgical intervention could take place. Mom as calm as ever, her faith allowing her the ability to feel a sense of peace; safe and accepting of whatever the outcome may be. Me, a nervous wreck as the daughter and nurse in me repeatedly runs through my mental checklists, “did you pack your medications, did you take your Coumadin (blood thinner) out of your med box, remember you can’t take that before surgery! Do you have your insurance cards? Did you unplug unnecessary small appliances? Did you lock your doors? Did you bring your keys? Yeah, I’m enough to drive anyone to drink. She handles me better than I would handle me.

We check in to a nice hotel, because even medical stuff can be turned into a little vacation, right? We decide to sit in the quaintly decorated lobby before turning in for the night. After all, it’s after 8 pm and we have a long day tomorrow. We sit by the festively decorated Christmas tree, soft holiday music playing in the periphery. We are sipping tea and admiring the tree ornaments and miscellaneous decor. A “mature” couple appears at the self-serve coffee and tea bar. The Mrs. is hobbling along with a cane. An attractive lady likely in her late sixties early seventies. The Mister is older, mid eighties at first guess. They are selecting their tea bags of choice and I can see my mom’s wheels spinning. She is yearning to talk to these random strangers. I’m biting my tongue, “mom….did you see the pretty tree topper?” Hoping to distract her until the couple disappears to their room. Nice try, Colette. Once my mom made eye contact with the lady the rest of our evening would unfold in an unexpected (but not totally surprising) manner.

“Hellooooo” mom announces in her sweet voice. The lady turns and gives a half smile. “Where are you here from, long day traveling? “Um, we are here from about 1/2 hour west of the Chicago airport.” “Well, I bet you’re tired, would you like to come sit with us, we are just visiting by the tree, isn’t it beautiful?” “Umm yes, I don’t see why not. Not sure where my husband scooted off to.” Husband quickly returns and joins us. Within moments, my mom and her new friend “Carol” are sharing knee replacement stories and giggling like long lost friends. Carol’s husband “Don” sitting next to her in the soft blue upholstered chair that is the epitome of hotel lobby furniture. A sweet, patient smile on his face.

My mom wastes no time enlightening them as to the issues with her eyes and why we are here in the first place. Don lights up and takes delight in telling her he had a similar situation five years prior while vacationing in Reno, Nevada. They instantly connect and converse over their commonalities like they’ve known each other for years. Don reassures her she will do fine and between him and his lovely wife, they recall, in detail, about the recovery process. Our conversation somehow morphs into home decorating and my mom tells Carol that she and I don’t agree on that one bit. Me, preferring more of a minimalist aesthetic, she a hodgepodge of stuff she’s collected over the years, in addition to her frequent finds at the dollar tree (junk, as I usually point out.) Carol smirks and adds that I sound just like her daughter. She tells us of the items of sentimental value she loves to display, like the felt tablecloth her uncle made and gifted her with many years prior. My mom lights up, adding that that stuff if right up her alley. Carol pipes in, “I try to send some of my holiday treasures home with my granddaughters to enjoy, but it comes right back to me, my daughter telling me she doesn’t want that junk.” We all laugh because it resonates so familiar. I tell Carol my mom and I love each other dearly but can fight like cats and dogs. She affectionately assures me that “mothers and daughters are complicated…. it was like that with me and my mom and it’s the same with me and my daughter.”

More than an hour has passed, and we collectively determine it’s a good time to retreat to our rooms for the night. We exchange room numbers and they assure us they will check in on mom tomorrow. Mom and I go to sleep with a sense of peace and comfort knowing there are such great people in the world, in our world.

The surgery is Monday and in true Linda fashion, she is upbeat and optimistic. She flirts with every male healthcare worker she comes in contact with. They love her spunk and play right along, finding her humor contagious. I’ve succumbed to the fact that this is my mom’s personality and after more than eight decades on this earth, my uptightedness isn’t going to change that. Nor should it. We work on crossword puzzles together, me giving out the clues, and together we try to guess the mystery words. It passes the time and we enjoy each other’s company. “I trust God, it will work out as it is meant to, I’ve had 82 years of vision, if I come out with only one good eye, it’s okay. I am so thankful for the skilled professionals and appreciate whatever they can do to help me.” A lump in my throat, she has dealt with a lot in her lifetime, but never fails to recognize the good in every situation, the good in every human being that walks the face of this earth.

Surgery goes without a hitch. We head out for a late lunch/early supper, me teasing her that she is a cute pirate, eye patch in place. I lead her around, her eyes dilated and vision compromised as her eyes start to heal. I tuck her into bed at the hotel, making sure her head is in the proper position as directed by the surgeon, so that the gas bubble that is helping to repair the detatched retina, can do its thing. She assures me I need some time to myself and encourages me to go roam around Target while she naps. A deal too good to refuse, I take her up on it. When I return a couple hours later, she boasts that Carol and Don were just there and spent most of the time I was gone visiting with her, Carol presenting her with a candle that displays the words “Blessings are everywhere.” They had already exchanged phone numbers and addresses.

We sleep well and the next morning mom and I leisurely have breakfast together before deciding to get ready for the follow up eye appointment. I jump in the shower and follow my typical daily “get ready” routine. I’m sitting on the bed, hair wrapped in a towel, turban style. Pajamas on. My magnifying mirror in hand, as I carefully apply my makeup. We hear a rap at the door. Assuming its housekeeping alerting us that we are late for checkout, I hide behind the door and crack it open. It’s Carol and Don. They popped in to say goodbye to their new friend and make sure she’s doing okay. We invite them in and they sit and visit, me carrying on with my task, disregarding the fact that I typically wouldn’t be caught dead like this. Mom laying on her left side on the bed in the fetal position, adhering to her postoperative instructions. We are carrying on as though we’ve know these people our entire lives. Seems like we have. We part ways with hugs and promises to keep in touch.

The follow up appointment goes great. Everything looks as it should at this point in time. We prepare for the long trip home, deciding to stop at Joann’s Fabrics to sift through their sale items. I round the corner to find mom hugging a fellow shopper that is adorned from head to toe in Christmas attire. A bald head with snake tattoos on the back of her scalp and poinsettia decorations on the front of her head, framing her face. Her dress is festive, almost resembling a tree skirt. Her smile radiant and mom is immediately drawn to her. I feel like she may have escaped from a mental institution. Mom sees nothing but a woman passionate about the holiday. Mom names her “Merry” and the woman thinks that’s the greatest. They hug and before we leave the store, we are invited to her house for cookies, which we had to decline. “Okay, promise me next time you’re in the area you’ll come knock on my door. She announced her address, it’s a red house. Knock at my door, can’t wait to see you again!!”

We head for home, I remind mom to put an entry for next Tuesday on her calendar when she gets home. “We have to do a road trip to Petoskey for your next eye follow-up.” “Oh, aren’t we just like Thelma and Louise??” “No, I think we are just Colette and Linda. We are own thing.” We laugh. Blessings are everywhere.

Friendship, it IS a life skill

I’ve been trying to really focus lately on helping Dan with life skills. It’s something that many of us so-called “neuro-typicals” take for granted. I mean, how hard is it to fold clothes, make a simple meal, or handle some phone calls for appointments, etc.? I’m here to tell you it doesn’t come naturally to everyone. Something as natural as eye contact can be a challenge.

Maybe I should be focusing on doing laundry with him right now, or whipping up an easy meal. But I’m not. We are working on having friends. We are working on looking people in the eye, even for 1-2 seconds at a time. We are working on asking people about THEM. Not interjecting facts about the Titanic and the number of electoral votes each state gets. It’s about taking that first step to send a text and to actually respond when you finally get one from someone else.

I’m a social gal. I thrive and have always thrived on social connections. I love friends. There’s something magical and heartwarming to have “old” friends that have been with you through so many of life’s seasons. We’ve seen each other sporting bad perms, awful hair styles and hilarious fashion trends. We’ve kept in touch and connected during the pre-social media era. We passed notes in class, gave each other rides in our ugly cars that didn’t have a single bell or whistle.

I would have never survived college, nursing school, any of my jobs….without my friends. Old friends, new friends. They had/have my back. I had/have theirs. I wouldn’t have survived the challenges I have had as a parent, a daughter, a wife without my friends. Norb and I often sit around a kitchen table or any type of social setting with a group of friends we view as family. Sometimes my heart feels overwhelmed with gratitude, as they have such an important role in our lives. That is the connection I want for my son. I want him to experience that sense of camaraderie.

So today, we are reaching out. We are going to practice sending texts and actually responding. I will probably have him actually CALL someone and talk for a few minutes (okay, thirty seconds to a minute may be more realistic, but we need to start somewhere.)

And last but not least…..my heart will forever be grateful to Lauren, who has taken on Dan as a brother and friend and showed him love and friendship that money could never buy.

And may I ask…if you see someone that struggles socially. Pay your good social fortune forward and give them a smile, ask a question, make a connection.

Be good to yourself…

It’s January 1st. We are supposed to have a new year’s resolution, right? We are going to be better, we are going to do more, we are going to like ourselves (and maybe like other people) better, right?? Nope, not me. I am focusing on liking life NOW. I don’t need to do more ( I work a full time job, bust my butt to be a good wife, mother, daughter, friend.) What more do I need to throw in there, seriously?

I have this horrible habit of comparing myself to others. If I was as smart as her……. If I was as good a nurse as him/her……. If I could wear that kind of clothing like she does…. If I had the money to go here or there or buy this or that like they do….. Yeah, the list goes on.

Truth is, I AM smart. Maybe not as smart as I would like to be. But smart enough. My life has been successful. I’m not a genius, but I am enough. I AM a good nurse. As nurses, we are not all the same. We bring different skills to our work place. I can’t rattle off a lot of intellectual facts about medications and mechanisms of action and every detail about certain disease processes. But I can take care of you. With empathy and compassion. We need to be different, we need to bring different skills and strong points with us to be effective as a team.

We all seem to think that losing a few pounds will make us better. It will make us a smaller version of us. But at the end of the day, I am still me. No matter the clothing size. And another truth is, no one is losing sleep over the size of me. So for now, I am choosing to be happy with me. How and who I am TODAY.

And money….I am comfortable. I have enough. Not too much, but enough. And realizing that many others can’t say that, makes me humbly grateful. I do not want to make my job my number one priority to have more “stuff.” I will not be on my death bed saying “I wish I would have worked more.” I want to continue to create wonderful, special moments and memories with family and friends …filled with sentimental value that no amount of money can ever buy.

So as 2022 starts, I am going to continue being me. Imperfect, forgetful, fashionably late, always.

Wishing you and yours a happy new year! May your days be filled with what makes you happy and your heart content. Be good to yourself. And drink the coffee, the fancy stuff!